Welcome to the PAD-CO List Serve Website
For the discussion of the unique problems, concerns, joys and successes of parents of adults and older children with disabilities, and for finding goals and directions which we can voice to others to further the progress of our children with disabilities. Founded: July 4, 2002
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And just WHEN is a loss of services important enough to start advocating? * They took my Home Care Allowance and I didn't advocate (others will do it, right?) * They reduced my SLS waiver benefit and I didn't advocate (others will do it, right?) Question - will you start advocating when they cut all services to everyone? But, by then, it will be too late. Oh, I forgot. Others will do that. Isn't it always "others?" The more supports that are removed, the busier one is. The busier one is, the less one can advocate. The less one advocates, the more they take away. |
This is the system with which we must deal!!
RECENT IMPORTANT ARTICLES, POSITION PAPERS AND OTHER INFORMATION
(Please also click here to check the "Documents" section for recent info)
Newest Posts:
Parent Resource Directory and Letter Sent to all Colorado Legislators
"Since we can’t be at the Capitol to answer your questions and provide input, the group “Parents of Adults with Disabilities in Colorado” provides this parent contact list (for legislators)."
A Review of the responses to the 2007-2008 PAD-CO Retaliation Survey
"I fear retaliation because the [Metro area CCB], since it operates as a "non-profit", is not subject to any oversight by the State. There is no way to report anyone from the [Metro area CCB] for review. They are often slow in providing answers or provide wrong answers and then retaliate against consumers when consumers call the State. I try not to complain but have in the past."
In regards to advocacy, here are some of the things that PAD-CO has done this past couple of years for our adult children - all with no funding, no office, and using only volunteers.
* We testify at legislative hearings,
* contact and work with legislators,
. . . . - click above to read more . . . .
Letter from the Colorado DMV in Response to a Complaint from PAD-CO
"The parents' experience at the Prince Street and Arapahoe Road offices was clearly unsatisfactory. The poor customer service at these two offices was not within the standards expected at our 38 Colorado Department of Revenue's Division of Motor Vehicles driving license offices as well as the 18 county offices that operate under a memorandum of agreement with us"
"She very rudely informed me that she would not talk to me and she ordered my son to pick up the telephone on our side while she picked up the one on her side so that I could not hear what was being said. My son's answer to most questions from anyone is "I guess so" or "I'm not sure". She then thrust a piece of paper in his hands which he looked at and gave it back to her and said "I'm not . . . "
Focus Group Study by "The Alliance" and response by PAD-CO
"1) Representative of the designated region; 4) Unlikely to polarize others participants."
"Item 1 [above] is, to me, utterly unjustified and unjustifiable." "Item 4 [above] is bizarre, in that it automatically excludes participants who are “outliers.. . . . ”
Some Thoughts on "Pure Advocacy"
"is it possible to have a 'pure' advocacy organization, and, if so, how would it advocate? . . . "
County Mill Levy Fund Match, Financing, Cuts
Transparency in the System:
PAD-CO, CCDC, Parent to Parent and Petition for Change in Colorado Springs call for external review of the structure of the Colorado DDD system
Other
Final results of the Natural Supports Survey
Messages to Directors of HCPF, CDHS and CDPHE by Dr. Denver Fox and Sheryle Hutter, advocate
You tube video - "Disabilities Don't Wait"
