Various emails sent to advertise the survey

Survey on "Natural Supports" for Individuals with Disabilities and Families

 
Many of us have been told that we should use our "natural supports" to provide services to ourselves and our kids - even in place of paid services.  Do you have natural supports?  Tell us if you do or not, and a bit about them.
 
This is an 8 question survey, anonymous and should take about 5 minutes or less.
 

This is for parents/guardians, caregivers and individuals with disabilities ONLY.

http://www.surveymonkey.com/s/JWWTXBF

 Results, when completed, will be posted on the PAD-CO website.  We will leave the poll open about 30 days.
 
http://www.ourwebs.info/indexpad.htm
 
This poll was developed by Denver Fox, Ed.D. dnvrfox@aol.com

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Update on National "Natural Supports" Survey
I have had 84 responses, and, since I am pretty sure we will go over the maximum free responses allowed by Survey Monkey of 100, I went ahead and bought a one-month enrollment in Survey Monkey - which also allows me to download information, charts, do crosstabbing, filtering, etc.
 
However, I am not yet getting the response we need.  I really hope for about 1,000 responses from across the country.
 
So far, there are a couple of interesting anomalies.
 
One is that 36% report they can "regularly depend on" family for natural supports, along with 30% reporting the same about friends, and 29% reporting the same about "other" (remember, this part of the poll you can check "all that apply" so that the percentages will add up to way more than 100%), while, in another question, 68% report "little," "miniscule and "no support" - the two sets of figures between the two questions are possibly contradictory.  Any explanations besides folks psychologically not wanting to insult their friends/neighbors/relatives, etc.? However, it could be that the 36% checking "regularly depend on family" are the same folks checking all the other categories, which WOULD jibe with the rest of the survey.
 
When all is done, I will be able to do some crosstabing and looking at individual surveys to see what is happening.
 
We have had 60 written comments - all of which are fascinating and telling, some quite heartfelt.  All will eventually be posted to the internet, and will be available to you to be forwarded in a more formal report to state and national policy makers, politicians, etc..
 
We will close the survey May 7, 2011.
 
In the meantime, I ask your help in getting the survey to more people by again placing the following message in any and all listservs in which you participate, and sending in email to friends:
 
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Nationwide Survey on "Natural Supports" for Individuals with Disabilities and Families

http://www.surveymonkey.com/s/JWWTXBF

Many of us have been told that we should use our "natural supports" to provide services to ourselves and our kids - even in place of paid services. Do you have natural supports? Tell us if you do or not, and a bit about them.

This is an 8 question survey, anonymous and should take about 5 minutes or less.

This is for parents/guardians, caregivers and individuals with disabilities ONLY.

http://www.surveymonkey.com/s/JWWTXBF

Results, when completed, will be posted on the PAD-CO website. We will leave the poll open until May 7, 2011.

http://www.ourwebs.info/indexpad.htm

Please copy and paste this post into your listservs and emails. Lets get as many responses as possible. Thank you

This poll was developed by Denver Fox, Ed.D. a parent of two adult children with disabilities - dnvrfox@aol.com
 

 

I have received 187 responses as of 10:00 pm 04/16/2011 to the natural supports survey.  This includes 124 individually written responses - allof which are interesting and tell a story.  Once the survey is closed May 7th, you will be most interested in reading these poignant comments when posted online.
 
Please help to get more responses by sending the following message to all friends, and including it in any listservs or other appropriate groups to which you belong.
 
===============================================
 
Nationwide Survey on "Natural Supports" for Individuals with Disabilities and Families

http://www.surveymonkey.com/s/JWWTXBF

Many of us have been told that we should use our "natural supports" to provide services to ourselves and our kids - even in place of paid services. Do you have natural supports? Tell us if you do or not, and a bit about them.

This is an 8 question survey, anonymous and should take about 5 minutes or less.

This is for parents/guardians, caregivers and individuals with disabilities ONLY.

http://www.surveymonkey.com/s/JWWTXBF

Results, when completed, will be posted on the PAD-CO website. We will leave the poll open until May 7, 2011.

http://www.ourwebs.info/indexpad.htm

Please copy and paste this post into your listservs and emails. Lets get as many responses as possible. Thank you

This poll was developed by Denver Fox, Ed.D. a parent of two adult children (43 and 46 YO) with disabilities - dnvrfox@aol.com

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Natural supports - more discussion
 
The reason the "natural supports" survey we are doing  right now is important is that policy makers - at the highest levels - see "natural supports" as the answer to solving the waitlists without any more funding.  They assume that all of us have family, friends, neighbors, churches, etc., that can be recruited for free to provide services for individuals with disabilities, in place of paid staff.
 
Natural supports usually involve relationships with family members, friends, co-workers, neighbors and acquaintances, and are of a reciprocal (give-and-take) nature. Yet, to my knowledge, no one has ever studied "natural supports" - at least from a parent's, caregiver or individual with disabilities point of view.  Are they REALLY out there?  Do folks REALLY use them.  Are there neighbors, friends and family actually willing to do this kind of work for free? 
 
Are natural supports more available to young, smaller "cuter" and easy to manage children?  Do they become less and less available as one's child gets older?  What about when one's child is 60, non-verbal, with severe medical and behavioral challenges and other disabilities.  Are there going to be "natural supports" for that child?
 
There is a group of parents/professionals who tout "natural supports" as the only way to go.  Is this because it has worked for them - because they have family, neighbors, etc., who pitch in?    Because their child is young and easy and rewarding to work with?  Or, are they simply great ate getting natural supports for their child?  What about when these parents are dead?  Should they use their success as a basis for pushing the "natural supports" agenda and process on everyone else?
 
Does the fact that there are more and more working folks across the country (male and female) influence the number of volunteers and help one might be able to recruit?  How does one recruit "natural supports" anyway?
 
Is it appropriate and psychologically healthy - for both the parent and the child - to keep a child in a family home years after most people would normally start an independent "real life" of their own in the community?
 
Again, no one seems to have thoroughly studies these issues.
 
The current survey is NOT designed to review in depth the issues outlined above.  It is a brief survey, the results of which will hopefully be the prompting for some major funding agency to actually do a thorough survey on all aspects of "natural supports" to answer the questions above, and more, before it becomes the policy of the land.
 
I know that in our own situation with my own son, there was a total rejection of our family and its needs by our immediate families.  When we started an intense therapy program at home, we recruited over 350 volunteers over a 6 year period - but it took intensive amounts of efforts, marketing skills and organizational skills on our part to do this, and it was for the specific purpose of in-home therapy.  Without that specific purpose, we would have had no volunteers.
 
So, again, your assistance is asked in completing this survey at:
 
http://www.surveymonkey.com/s/JWWTXBF
 
and in passing it along to others.
 
 
Denver Fox
Moderator, NOEWAIT

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APRIL 19TH 5:40 AM MDT UPDATE ON NATURAL SUPPORTS SURVEY
322 responses with 204 written responses from all over as of this early morning.  I will be definitely closing the survey May 7, simply to limit the input - or, if earlier, at 1,000 responses, as that is all I have paid for :)  Some MOST interesting stories and input.
 
Anyone out there with a statistical bent want to help with the analysis of data?
 
Using the Survey Monkey software, it will be easy to organize raw data.  For example, I can sort, download and list the written statements by age of the individual with a disability, or the stated type of disability, etc.  I can create cross-tab tables and charts between two separate variables.
 
I can do content analysis, but it is time consuming, and it would be nice to have it done by a 3rd party  - and I would be open to other suggestions as to handling the data.
 
The last time we did a survey like this, we had a master's degree student organize and develop a report for her MA project.  However, that was a MUCH more complex survey.  FYI, the final report for that survey is available at:
 
http://www.ourwebs.info/survey.htm
 
If you haven't taken the survey yet, it is available at:
 
http://www.surveymonkey.com/s/JWWTXBF

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